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SCDAA And MedicAlert Pilot Program Application
SCDAA and MedicAlert Pilot Program
Improving quality of life for people with sickle cell disease
Sickle Cell Disease Association of America, Inc. (SCDAA) and MedicAlert Foundation are collaborating on a pilot program to improve the experience for people with sickle cell disease (SCD) who seek treatment for a pain crisis in an Emergency Department (ED).
About the pilot
Every participant in the pilot program will receive:
- MedicAlert Smart Medical ID Card
- The card uses a QR code to link to your MedicAlert health profile.
- 1 year Advantage Plus Protection Plan
- Your membership plan includes a self-managed health profile, That’s where you store your SCD pain plan, contact details for your hematologist and other providers, as well as vital health information such as allergies, other medical conditions, medications you’re currently taking, surgical history, emergency contacts, and more.
- By scanning the QR code, ED personnel will have immediate access to your health profile, including your SCD pain plan (if one is provided), as well as all the other important information in your record.
The ID Card and protection plan are provided free of charge to participants.
Our goal is to see if this tool makes getting the help you need in a pain crisis easier and faster for both you and ED personnel. To measure that, you’ll provide pre- and post-pilot information on your ED experiences, along with monthly check-ins.
Please consider participating. With your help, we can establish tools that will benefit everyone living with sickle cell. If we prove the effectiveness of this approach, the goal for SCDAA and MedicAlert Foundation is to seek funding to greatly expand the program.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.